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Amyotrophic Lateral Sclerosis (ALS) Society of Quebec

Introduction

Founded in 1983, the Amyotrophic Lateral Sclerosis (ALS) Society of Quebec is a non-profit community organization. Their mission is:
• to provide support and referrals for people living with ALS and their loved ones;
• to fund research;
• to raise awareness of this disease among the general public, government officials and medical and paramedical practitioners.

Monday to Friday - 8:30 am to 4:30 pm

Contact

  • Address: 5415 Paré Bureau 200 Mont-Royal H4P 1P7
  • Contact person: Michel Richoz (adjoint administratif) / Véronique Pignatelli (directrice des programmes et services)
  • Phone: 514 725-2653 ou 1 877-725-7725 (sans frais)
  • Email: [email protected]
  • Website: http://www.sla-quebec.ca
  • Areas covered: All Quebec regions

Services

Respite

  • Types: In the home, Outside the home
  • information about respite services
  • Duration: Less than 24 hours, 1 to 4 days, 5+ days
  • Time periods: Daytime (8 a.m. to 4 p.m.), Evening (4 p.m. to midnight), Night (midnight to 8 a.m.), Weekend
  • Cost: Free
  • Refund of respite services up to $ 1500 per year.
  • Access limited to: Reserved for members
  • Waiting list: No
  • Language: French, English
  • Associated transportation service: Yes
  • Refund of transportation fees are also possible through the financial program.

Information and documentation

  • Types: Talks and seminars, Documentation, Online resources, Information phone service
  • Themes: The disease, The caregiver's role, Older persons, Difficult behaviours, Communicating with a loved one, Work/life balance, Legal and tax information, Government programs and services, Community services, Open doors, meetings and presentations with their partners (CLSC, CHSLD, rehabilitation centers, etc.)
  • Time periods: Daytime (8 a.m. to 4 p.m.)
  • Location: In the home, At the organization
  • Cost: Free
  • Access limited to:
  • Aucune
  • Waiting list: No
  • Language: French, English, They collaborate with CACI for translation services when needed
  • Associated respite service: Yes
  • In addition to their respite program, incidental respite expenses for their activities may be reimbursed by the Society to facilitate the participation for caregivers.
  • Associated transportation service: No
  • Reimbursement of transportation costs to facilitate the participation of caregivers.

Training activities

  • Types: Themed workshops, Distance training
  • Themes: The disease, The caregiver's role, Communicating with a loved one
  • Time periods: Daytime (8 a.m. to 4 p.m.), Evening (4 p.m. to midnight)
  • Frequency: A few times a year
  • Location: In the home, At the organization, Trainings are often accessible via webinar
  • Cost: Free
  • Waiting list: No
  • Language: French, English
  • Associated respite service: Yes
  • In addition to their respite program, incidental respite expenses for their activities may be reimbursed by the Society to facilitate the participation for caregivers.
  • Associated transportation service: Yes
  • Reimbursement of transportation costs to facilitate the participation of caregivers.

Support

  • Types: Individual support, Group support, Phone or online service
  • Time periods: Daytime (8 a.m. to 4 p.m.), Evening (4 p.m. to midnight)
  • Location: In the home, At the organization
  • Cost: Free
  • Waiting list: No
  • Language: French, English
  • Associated respite service: Yes
  • Associated transportation service: No
  • The Society can reimburse certain transportation costs through their financial contribution program (350$ / year for special needs related to illness).

Legal and tax assistance

  • Types: Complaint assistance, Advocacy
  • Time periods: Daytime (8 a.m. to 4 p.m.)
  • Location: In the home, At the organization
  • Cost: Free
  • Waiting list: No
  • Language: French, English
  • Associated respite service: Yes
  • Associated transportation service: No

Home care

  • Types: Meals, Personal care and hygiene assistance, Housekeeping, Equipment rental, purchase or loans, Security and surveillance
  • Time periods: Daytime (8 a.m. to 4 p.m.), Evening (4 p.m. to midnight), Night (midnight to 8 a.m.), Weekend
  • Location: In the home, At the organization
  • Cost: Free, $$
  • Access limited to: Reserved for members
  • Waiting list: No
  • Language: French, English
  • Additional information: Home care is offered through financial assistance. Their financial contribution program can be used to help with meals, daily care and hygiene, and housekeeping. Security and surveillance (remote monitoring) is part of their equipment program; they cover the monthly costs of a remote monitoring service.

Transportation

  • Types: Adapted, For medical appointments, For activities and shopping
  • Time periods: Daytime (8 a.m. to 4 p.m.), Evening (4 p.m. to midnight), Weekend
  • Reservation deadline: Support may cover total or partial costs.
  • Cost: Free, $$
  • The organisation does not operate a transportation service, but they provide financial assistance for transportation needs. Reimbursement of transportation costs for medical appointments and other locations through their financial contribution program. Also, they offer reimbursement of transportation costs for their activities (for low-income families).
  • Access limited to: Reserved for members
  • Waiting list: No
  • Language: French, English

Last updated June 22, 2018